Our blessing Lyla arrived on July 31, 2009 and was diagnosed with Trisomy 18 (Edwards Syndrome) shortly after her birth. It seemed like the world came down upon us, as the life we had imagined with our beautiful daughter would not be as we planned. By no means has this been easy, but we know that our time with our angel may be far too short so we don't want to miss a minute of it and refuse to let anything get in our way of enjoying our time. We love Lyla more than words can ever express and we will love, comfort, and appreciate each and every day of her life.