December 28, 2009
Couldn't have asked for anything more! We were able to celebrate Christmas with our precious baby girl!
November 5, 2009
Lyla visited her cardiologist at Valley Children's Hospital yesterday for a follow-up appointment. The news we received was expected. There is now significant blood flow moving through the large VSD that she has. So, the doctor has started her on Lasix and Lanoxin to help regulate her heartbeat and fluid retention in her lungs. These meds will help with the symptoms of congestive heart failure. Although, these meds will not cure her, the expectation is that they will make her more comfortable...we are hoping for the best! She also started the NG tube today and she just hates it. I am hoping that she gets used to it in the next couple of days!
October 23, 2009
Here are some updated pics of Lyla. She has been doing pretty good. She went to the doctor today and weighed in at 5lb8oz. Looks like we have to work on increasing her calories to promote better weight gain. She still only eats an ounce at a time, so we need to work on getting her to eat more :-) Other than that, she's doing pretty good!
Just a quick update on Lyla :-) She has been doing pretty good. Even though we have supplemental oxygen for her, she hasn't had to use it much lately!!! yay! Oh, and we haven't had to put the nj tube back in. The next couple of weeks will be busy for us...she'll be going through testing, assessments, and more than likely start some type of therapy (mostly for feeding), hopefully all this will help lyla continue to grow and stay strong!!
Happy Birthday!
Today, Lyla turned two months old!! We celebrated with cake and ice cream and of course momma made her a special shirt to wear :-)
Phew, what a busy week we had this last week!! Three doctor appointments (pediatrician and gastro specialist), two home nurse visits, and a couple of rough nights. Lyla is up to 5lbs 8oz, which means that she has managed to gain 10oz in the last 8 weeks. I can't believe it's been 8 weeks already! Lyla's breathing "spells" increased this last week, so we now have oxygen at the house to administer to her when she needs it. She's not to fond of anything touching her nose (including my kisses) so she doesn't seem to like the nasal canula very much, but it seems to help her out during feedings, so she doesn't fight it too much. The specialist recommended that we give the ng tube a try for feedings. I don't want her to forgot how to eat, so I am willing to give the ng tube a try in conjuction with oral feedings...so, we will see how things go next week.
My BFF
Lyla was finally able to meet her best friend, Amaiyah! Amaiyah had to have open heart surgery, so it took awhile for the two to meet, but once they did it was best friends at first sight :-)
Special Poem - Angels Unaware
I read this poem and had to share it with you...
The gift I give to you will not be made of gold,but it’s beauty is more splendid and precious to behold.
The hands of man could not defile this gift so pure and sweet for it’s constructed by a higher being with whom man cannot compete.
The very presence of this gift can warm the human heart.The joy it brings is heavenly, and never will depart.
I’ll give you mountains of laughter, but there’ll be some valley’s too.I will not leave you comfortless... I’ll be right here for you.
Not everyone can have this gift. You are chosen ones...you see.I looked upon the earth below, and saw that YOU would be.
I will give you extra strength which you will need to tarry;and if you’ll call upon my name, your burdens I will carry.
There will be ones who don’t understand, they have not eyes to seethe beauty of this special gift; given to you, from me.
Lift up your arms, receive with joy the special gift I bear.My chosen ones, I give to you an Angel...unaware.
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